Consumer Advisory Council members have met by Zoom during the pandemic

Consumer Advisory Council

KUCDD-CAC is an advisory council; a majority of its members are people with developmental disabilities.

The primary function of the KUCDD-CAC is to advise KUCDD’s director, researchers, and staff about issues that are important to people with developmental disabilities and their families in Kansas. The KUCDD-CAC also provides advice regarding the center’s strategic plan and offers feedback to researchers on their current projects, as well as advice about new proposals. Perhaps most importantly, the KUCDD-CAC connects the KUCDD to other organizations in Kansas that are working to improve the lives of people with disabilities and their families. The KUCDD-CAC meets virtually or face-to-face four times each year.

CAC Members

Chris TestorffChris Testorff
Chairperson
Yates Center, KS

My name is Chris Testorff. I am a Past-President of the Self-Advocate Coalition of Kansas and have spent many years advocating for people with disabilities. I try my best to encourage everyone I meet to recognize their value to the world and to be the best person they can be, and that includes people with disabilities. I am proud to be the Chairperson of the KUCDD/LEND Consumer Advisory Council and to contribute to all of the great work at KUCDD and LEND.

Kathy LobbKathy Lobb
Vice Chairperson
Lawrence, KS

My name is Kathy Lobb. I am an I/DD & Aging Specialist with the Self-Advocate Coalition of Kansas. During the 2021 Kansas legislative session, a bill was proposed which requires the state to actively, intentionally employ people with disabilities. This bill was named “Kathy’s Bill” after me, because I had requested the state do this every year for twenty years! I live in my own home in Lawrence.

Aaron AlspachAaron Alspach 
Self-advocate Coalition of Kansas (SACK) representative 
Garden City, KS

My name is Aaron Alspach. I’ve been an advocate since 2001. Some of my leadership activities have included visiting with Sen. Moran about Amtrak and transportation for people with disabilities and participating in Push Day at the Capitol in Topeka. I am the current Vice President of the Self Advocate Coalition of Kansas and I recently graduated from Kansas Leadership Center training. 

Askia Adams

Askia Adams 
Member 
Kansas City, KS 

My name is Ski Adams. I have been a disability advocate for over twenty-three years. Some advocacy activities I have worked on include passages on the Kansas Employment First Law and serving on a five-year core grant review team.

Stephanie SchafferStephanie Schaffer 
Member 
Leawood, KS

 
Hi, I’m Stephanie Schaffer, mom to two children, one who is physically and intellectually disabled and diagnosed with autism and anxiety. I have been an advocate for my son for 18 years, served on the advisory council for over two years and completed LEND training

Rocky Nichols

Rocky Nichols 
Disability Rights Center of Kansas representative 
Topeka, KS
 
My name is Rocky Nichols. I am the Executive Director at the Disability Rights Center (DRC) of Kansas. I have over 30 years of experience in non-profit leadership and public policy advocacy (11 as a member of the Kansas House of Representatives, two as legislative staff, and the remainder at DRC Kansas).

Steve GieberSteve Gieber 
DD Council Dir Rep  
Salina, KS

My name is Steve Gieber. I am the Executive Director at the Kansas Council on Developmental Disabilities and President of the National Association of Councils on Developmental Disabilities.

Jason Cooper

Jason Cooper 
Member at Large 
Garden City, KS

My name is Jason Cooper. I am a self-advocate who lives in Garden City, Kansas. Advocacy for people with disabilities is very important to me, and I have been involved in the self-advocacy movement for many years. I enjoy attending and presenting at SACK conferences, and participating in the SACK chapter in Garden City.  I enjoy serving on the KUCDD-LEND CAP and am proud of the work we do.


KUCDD-CAC Liaisons

Brad LinnenkampBrad Linnenkamp 
KU Lawrence Campus 

My name is Brad Linnenkamp. I work for the University of Kansas Center on Developmental Disabilities (KUCDD) as the Community Liaison.  Before coming to KUCDD, I worked for the Self-Advocate Coalition of Kansas for 20 years. I sit on several state and national committees including the Self-Advocate Resource and Technical Assistance Center (SARTAC) National Advisory Board where advocates from across the United States are gathering resources for advocacy to be available in one place. 

Jessica Schuttler

Jessica Schuttler 
Kansas University Medical Center
 

My name is Jessica Schuttler. I have worked as a psychologist in clinical and school settings with a disability focus for the past 15 years. I am also the Training Director for the Kansas Leadership Education in Neurodevelopmental Disabilities program and KUMC Site Director for KUCDD. I am grateful to work with the CAC and to have worked with and learned from many children, families, students, and professionals over my years in the field.

Jim ThompsonJim Thompson
KU Lawrence Campus

My name is Jim Thompson. I have over 40 years of experience in the field of developmental disabilities as a direct support professional, special educator, rehabilitation counselor, teacher educator, and researcher. I am an Associate Director of the KUCDD and a Professor in the Department of Special Education at the University of Kansas.