Deciding My Future: Supporting Decision Making, Learning from Self-Advocate Experience
Project Description
The purpose of this project is to develop and implement Deciding My Future, a planning process that will support people with intellectual and developmental disabilities (IDD) and their families to create supported decision-making plans based on the goals of the individual with IDD.
To accomplish this, researchers will partner with the Self-Advocate Coalition of Kansas to combine the lived experience of Supported Decision-Making as currently practiced by self-advocates using the long history of self-determination research at the Kansas University Center on Developmental Disabilities. We have these objectives:
- Conduct focus groups to understand the Supported Decision-Making arrangements that self-advocates have in place
- Develop Deciding My Future based on self-advocate experience with Supported Decision-Making and the Supported Decision Making Inventory
- Conduct two trainings to educate self-advocates and their family members/caregivers on how to use Deciding My Future to develop Supported Decision-Making plans
- Create a webpage to serve as a first stop for Kansans interested in Supported Decision-Making